Named funds at HudsonAlpha can be designated to support any of the areas that the Institute is researching, combining the passion of donors with the work of scientists. These funds may be used to contribute to the work of the Institute or to specific areas of research. You may donate to an existing fund or you may establish a fund of your own. The minimum amount to establish a named fund is $25,000 ($100,000 for an endowed named fund).
HINSON FAMILY MOTIVATED BY BROTHER-IN-LAW’S STRUGGLE WITH ALS
The family of Arvid Wakefield established the Annihilate ALS Fund in memory of their brother-in-Law.
“Defeating ALS has become very personal to our family,” said Brian Hinson. He and his wife, Jane, established the Annihilate ALS fund at HudsonALpha.
Hinson’s brother-in-Law, Arvid Wakefield, who was married to Hinson’s sister, Dawn Wakefield, was diagnosed with ALS in October of 2010 at the young age of 43. He died from the debilitating disease April 11, 2014.
“Our family witnessed the horrendous disease ALS take Arvid’s Life,” said Hinson. “During this time, we painfully realized that 75 years had passed since Lou Gehrig put a visible face and name to a disease that has no treatment or cure and an average Life expectancy of five years or Less after diagnosis.”
CLEARY DAUGHTERS’ FUND HONORS PARENTS CIVIC INVOLVEMENT
Sisters Johanna Cleary and Susan Sommers have established the James R. and Voncille J. Cleary Fund for Neurological Research in honor of their parents.
“Mom has followed HudsonAlpha since its inception,” said Johanna Cleary of her mother, Voncille Cleary.
In fact, Voncille has attended numerous HudsonAlpha public education classes and is a big fan of Vice President for Educational Outreach Neil Lamb, who Leads the Biotech 101 and 201 series.
The Clearys actively contributed to the growth of Huntsville. James Cleary established the Army Legal office at Redstone Arsenal and practiced Law for 56 years.
In addition to Law, James was a founding partner of WAFG, which Later became WAAY, founder of The Huntsville News, which he later sold to The Huntsville Times, and a founding director of Security Federal Savings and Loan. He also developed residential and commercial property in northwest and southeast Huntsville through his company Economy Homes and served on the Madison County Airport Authority from 1968-1986.
Voncille was a registered dietitian, the first accredited one to be hired by Huntsville Hospital. She also helped raise funds for the purchase of the first public Library bookmobile and has been active with other civic organizations.
The sisters chose to direct their fund to neurological disease. It is an area where they feel they can make a difference and that is close their hearts. “Our family has been directly affected by neurological disease,” said Johanna. “From our conversation with researchers here at HudsonAlpha, it’s clear that what they are doing can make treatments better for people and ultimately result in solutions.”
PURPOSE OF THE FUND
Wayne Widener lived for more than a decade with a rare neurodegenerative called corticobasal degeneration [CBD]. After his diagnosis, Wayne and his family spent years consulting specialists before finally learning there is no known treatment. With the help of his wife Luanne, his daughter Peri, other family members and an amazing family doctor, Wayne continued to live life as fully as possible. He passed away on March 23, 2013.
“During the decade of Wayne’s journey, we learned that there was no significant research into this family of diseases,” Luanne said. “My daughter and I are establishing this fund in an effort to shine a light on these rare and currently untreatable neurodegenerative diseases and to fund research that will hopefully unlock a treatment that will help others.”
There are more than 600 known neurodegenerative disorders affecting an estimated 50 million Americans. Researchers at the HudsonAlpha Institute for Biotechnology are actively working to identify the genetic causes of these disorders.
“HudsonAlpha has attracted globally recognized researchers who are focused on finding answers, treatments and perhaps cures for this family of diseases,” Peri said. “Even better, HudsonAlpha is a world-class organization in our adopted hometown. My father would be thrilled that such a renowned team has made it a priority to help others live with and beat these diseases!”
Wayne Widener was born and raised in Cleveland, Oklahoma and attended high school in Wichita where he was quarterback for the Planeview Gremlins. Wayne attended Wichita State University and had a successful 42 year career at Boeing. He retired while serving as the director of contracts. The highlight of his career was working as the lead negotiator for Boeing on the original Space Station contract. His hobbies included golfing – he was the 1963 Wichita City Golf Champion – gardening and fishing. He was a devoted husband and father and loved spending time with his family.
After Wayne became ill, he was able to stay physically and mentally active as well as socially engaged with the help of his wife, family, doctors, volunteer caregivers and friends. Wayne was determined to make something good come from a bad disease. He wanted to help others suffering from neurodegenerative diseases and asked his family to support research into finding treatments and cures.
After Wayne became ill, he was able to stay physically and mentally active as well as socially engaged with the help of his wife, family, doctors, volunteer caregivers and friends. Wayne was determined to make something good come from a bad disease. He wanted to help others suffering from neurodegenerative diseases and asked his family to support research into finding treatments and cures. “
In 2011, Rebecca Partesotti died from suicide after a years-long battle with depression. Rebecca’s parents Susan and Larry Partesotti, her sister Mollie Partesotti; along with Susan’s brother (Rebecca’s uncle) Tommy Siniard, his wife Susan Siniard and sister Paula Siniard Tally (Rebecca’s aunt) established the fund in her honor.
“When Rebecca was in the second grade her mom and I asked her what she wanted to be when she grew up. ‘I want to be someone who helps old people’ was her reply,” said Larry Partesotti, Rebecca’s father. “Twenty years later, Rebecca’s compass was still heading to True North as she was supervising The Elder Division of Maryland Legal Aid. Shortly thereafter, mental illness cut her career and eventually her life short. The thought of potentially making continued progress into creating solutions and cures to mental health issues is something that is very important to Susan and I and we are glad to move forward with our daughter, Mollie, Paula and the Siniard family in this important work.”
“We believe in the research that is happening at HudsonAlpha so we established this fund to not only honor Rebecca, but accelerate advancements in psychiatric disorders,” said Susan Partesotti, Rebecca’s mother.
Named funds at HudsonAlpha can be designated to contribute to the work of the Institute or to specific areas of research. Individuals can donate to an existing fund or establish a fund of their own, such as the Partesotti-Siniard Memorial Fund for Psychiatric Research.
If you would like to contribute, click the donate link and specify Partesotti-Siniard Memorial Fund in the comments section.
For more information on how to create a Named Fund, please contact Karen Petersen at email@example.com.
The HudsonAlpha Foundation, a 501(c)(3) nonprofit organization, is the supporting entity for the HudsonAlpha Institute for Biotechnology. Tax-deductible contributions to the foundation are for the sole purpose of advancing the mission of the HudsonAlpha Institute for Biotechnology.
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