The HudsonAlpha Foundation received a $1,050,000 anonymous donation to establish the Hero Fund to help patients who need, but cannot afford, access to genomic medicine. In November 2015, the HudsonAlpha Institute for Biotechnology opened the Smith Family Clinic for Genomic Medicine LLC. The Clinic uses whole genome sequencing to diagnose patients living with rare, undiagnosed or misdiagnosed diseases.
“A hero is defined as someone who shows great courage. We consider the patients at the Smith Family Clinic for Genomic Medicine heroes. They fight every single day, battling devastating diseases, ineffective or no treatments, and no answers. The Hero Fund will help more patients access the care they need,” said Howard Jacob, PhD; executive vice president for genomic medicine at HudsonAlpha and chief medical genomics officer of the Smith Family Clinic.
“The donor’s intent is to help as many patients as possible, so we have been tasked with raising matching funds,” said Lynne Berry, executive director of the Foundation. “Your ‘gene-erosity’ can make it possible to help those in need.”
The donation will establish an Endowment Fund from which funds can be drawn to help patients. A qualified patient who comes to the Clinic may be eligible for assistance through the Hero Fund. To learn more or to support the Hero Fund, visit hudsonalpha.org/hero.